Dysimmune and inflammatory neuropathies rare diseases affect 1.3 million people worldwide. Today they are still mostly incurable although there are symptomatic treatments. The ambition of the World din Day is to raise awareness, to strengthen the voice of patients, to accelerate research, to disseminate information and to show public decision makers how much these diseases impact the quality of life.
Together we are stronger !
Immune-mediated neuropathies are rare diseases that are still poorly understood, although they are potentially treatable.To find new treatments, research is essential.Some treatments, already known and very useful to maintain the physical autonomy of the patients, suffer from shortages almost everywhere in the world. Sometimes they are not accessible to patients at all.